Hi all. It seems that Fred hasn't changed since the December MRI. So, at this time it is just wait and see. I am scheduled for my next MRI on Sept 12th at Moffitt.
It seems that the "positive margin" is so microscopic that it could be scar tissue and not desmoid at all. Desmoid and scar tissue are very similar and with the amount it is impossible to tell. The fact that there hasn't been any change over the last 3 months leans toward scar tissue, which is great.
Regardless, I will still need to get MRIs every six months for at least the next five years to make sure there isn't a recurrence (or growth if the margins truly are disease). At that point I believe it goes to once a year indefinitely.
Thanks to everyone for your love and support. I am so very blessed to be surrounded by such caring and generous friends and family.
Unless something new arises, I won't post any new blogs until my next MRI in September.
Love,
Kel
