WOOOOHOOOOO!!!! Good news

I met with Dr Pollock today, he is a wonderful man.  He actually trained Dr Gonzalez (who I saw at Moffitt) and felt good about his recommendation.  He told me to go ahead and have the MRI at Moffitt on 3/7 and we will go from there. 

He said that what I currently have is about half an inch big.  He feels that getting scans every 4-6 months to see what it is doing gives us plenty of time to get it out if it starts to grow.  He actually said that what I still have could be scar tissue instead of remnants of the desmoid tumor.  After the fact, I am needing more clarification on this and will be emailing him to ask.  He said there are tests they can do to confirm whether it is scar tissue or desmoid that remains.  But, it is as invasive as going in to remove it, so it doesn't seem practical.

He said if the MRI shows growth/changes then we know it is desmoid because the scar tissue wouldn't do that.  And, depending on how it has changed/grown we can work together to determine the best course of action.

He said there isn't any research supporting having a hysterectomy to stop the flow of estrogen to prevent growth.  He said if the MRI in March confirms that I still have desmoid tumor remnants, then it may be wise to go on the Tamoxifen and NSAID (anti-estrogen, and anti-inflammatory) to help prevent growth.

Glen asked about any lifestyle changes that could be proactive.  Dr Pollock said the best advice is to not let this control or change our lives.  It is definitely controllable with these scans and watching.

He gave me his card and said to email or call with any questions even if it is years from now.  I will always be considered one of his patients.  The MD Anderson facility was amazing and I am very thankful to those of you who helped make this trip possible.

I feel better already.  I am looking forward to a good night's sleep and going home tomorrow!

THANK YOU, THANK YOU, THANK YOU, to everyone who prayed, and listened, and wrote, and sent so much love and positive energy my way.  It is such a wonderful feeling to be this loved!!!!

I will write again after the MRI and appointment on 3/7.  If I remember correctly, it is a late appointment, so it will likely be sometime that night before I can send an update.

Did I say thank you???  THANK YOU!!!!

Love,
Kel